Showing posts with label Baclofen pump. Show all posts
Showing posts with label Baclofen pump. Show all posts

Thursday, October 15, 2015

October 15, 2015 -- Return of the Seizures

Yikes!  That title kinda sounds like a horror movie, of which I am NOT a fan!  Ha ha!  But it'll make sense as you read on.  But to begin, thank you so much to the many who prayed for the neurologist appointment that Hope had at the end of August.  I was waiting to see what follow up would come of it, and will give you an update now on the appointment as well as her current neurological status. . .

Monday, September 1, 2014

September 1, 2014 -- Happy Birthday Hope . . . and Surgery Tomorrow!

On a day where there is usually a lot of excitement. . . the first day of school where we snap a picture of our dollie girls as they head off to another new year of adventure and learning together. . .

Friday, May 23, 2014

May 23, 2014 -- Another Goodbye!!!

Hope had an ultrasound done on Tuesday this week, and then we followed up with the neuro-surgeon just yesterday afternoon, so here is an update on Miss Hematoma and how our sweet girlie is doing in her recovery from the baclofen pump surgery and the hematoma/infection complications. . .

Monday, May 12, 2014

May 11th, 2014 -- Happy Mother's Day even with Miss Hematoma Hanging Around

Happy Mother's Day to all you precious mommies out there who everyday love on your kiddies!!!  Truly children are a blessing from the Lord!!! 

Click on "Read More" to continue reading this post. . .

Saturday, May 3, 2014

May 3, 2014 -- Thank You for Your Prayers!!!

Just wanted to give you a quick update and huge thank you for everyone who continues to keep our girlie in prayer. . .

Friday, May 2, 2014

May 2, 2014 -- Scary Seizure and Slurred Speech

Hello dear ones!  We are home. . . arrived yesterday evening.  Hope was doing well and got to go straight to youth and catch the last part of her youth night where a testimony was shared.  Testimony nights are her favorite and she did not want to miss it. . . so thankful for how much she loves it!  She was having a fair bit of myoclonic jerks that night, but that can happen when she's tired and her body has been through a lot, which this past week would definitely describe. . .

Thursday, May 1, 2014

Wednesday, April 30, 2014

Monday, April 28, 2014

April 28, 2014 -- Tests Begin and Possible Infection Source???

Well, it's Monday and with all the regular doctors back, both neuro-surgery and infectious disease, more things are happening. . .

Sunday, April 27, 2014

Friday, April 25, 2014

April 25, 2014 -- Room #15

Hello dear praying friends and family!  Hope is settled onto the unit now in hospital.  She is in the 15th room that she has stayed in at this children's hospital.  We kept lots of different number tallies for fun to help lighten the mood of the many room moves and trips to/from ICU 2 years ago.

Click on "Read More" below to read the rest of this post. . .

April 25, 2014 -- Please Pray!!! In the ER!!!

Hello all!  Just have an urgent request for prayer as Hope developed a sudden serious infection today.  These are the text updates sent to family so far. . .

Friday, April 18, 2014

April 18, 2014 -- We're Home!!!

We are home from the hospital!!!  So thankful to be home!

Please click on "Read More" to continue reading this post. . . 

Thursday, April 17, 2014

We Slept! Post op Day 2

Hello all!  Finally getting chance to send another update.  We've had a busy morning, but a much better one than yesterday's for sure!

Click on "Read More" below to continue reading this update. .  .

Wednesday, April 16, 2014

Crisis Morning but Better Now

Hello dear prayer warriors!  It has been an eventful day and I'm finally getting a quick few minutes to send you updates for prayer needs. . .

Middle of the Night Issues

Hello dear praying friends and family!  Hope asked me to please post this on her blog and ask people to pray.  I cannot say how it blesses this tired mama's heart to hear my daughter ask me to do that. . . she knows where her hope lies. . . in the God who is hearing every single word uttered on her behalf and always at work, and her knowledge that so many people love her so much to be praying for her throughout this journey.  Thank you just doesn't quite cut it for the thanks I have in my heart to the Lord for each and every one of you, dear ones!!!

Here is a list of things going on and how you can be praying. . .

Tuesday, April 15, 2014

Out of Surgery/Recovery and Settled into her Room on the Unit!!!

Hope took a while to wake up in recovery, but she is currently settled into her room on the unit now!  Surgery went well and the "hockey puck" is gone, along with all the catheter tubing that went with it!  : )  Yeah!!!

Click on Read More below for the rest of the update. . .

Pre-op Wait and Into Surgery

Hello dear praying friends and family!  Here is an update on Hope's pre-op wait and time up until going into surgery. . .